Each October, the Spina Bifida Association strives to shed more light on the causes, treatment and support for this paralyzing birth condition. The goal of this year’s #BeyondAllLimits campaign by the SBA is to increase the awareness of the Spina Bifida Community to the general population including needs, support opportunities (including community events and legislative advocacy efforts), advancements in research, and overall health care education.
A growing number of compassionate supporters, like Cure Medical, contribute to Spina Bifida programs such as their Walk ‘N Roll fundraising events nationwide, to help provide more resources and direct support for families who have children with Spina Bifida.
According to the SBA, approximately 177,000 Americans are currently living with the challenges that Spina Bifida brings.
“We attend every national Spina Bifida Association conference, like the one that took place this summer in Minnesota,” Cure Medical CEO John Anderson says. “In 2017, the SBA will hold regional meetings all over the country, and we support those events wholeheartedly too.”
“Cure Medical commits financially to supporting these events as well as local community programs because we have found that the Spina Bifida Association is tied very closely to the families they can help,” Anderson explains. “We know that when you donate to an SBA chapter program, the money raised actually goes to improving the life of folks who have Spina Bifida.”
September + October is SBA Walk ‘N Roll Season
Cure Medical is one of many supporters who show up in spirit and with financial contributions to help Spina Bifida Association chapters host their annual chapter fundraising events — Walk ‘N Roll outings that encourage families and teams to participate in local communities across the country. These events take place every year throughout September and October.
“We were so happy to learn that, for example in Michigan, the Walk ‘N Roll raised $26,000 to support local families who have children with Spina Bifida,” Anderson continues.
The Spina Bifida Association of the Intermountain Region raised even more with their recent Las Vegas Walk ‘N Roll, as 422 participants teamed up to fundraise $34,000 in support of local family programs for the coming year.
How Your Dollars Make A Difference with Spina Bifida Programs
According to the SBA, every donated dollar makes a distinct difference in the lives of people who have Spina Bifida. Their website states that 50% of the net funds raised at Corporate Chapter Walk-N-Roll for Spina Bifida events stay at the local chapter level and the Chapter Advisory Council decides how the funds are to be spent on local programs.
Examples of the ways donated funds are allocated at the local level include:
- Spina Bifida Community Networking Events
- Scholarships to National Conference or Education Days
- Special assistance granted to Spina Bifida families or individuals in need
- Advocating for local clinics, state legislative improvements, and improved health care
- Local Spina Bifida awareness and prevention
- Mentorship programs
- Support groups
- Newborn baskets
- Adaptive supplies library
The remaining 50% of net funds raised go to the National Spina Bifida Association office to cover the costs of managing and staffing the local chapter and help fund many other mission critical programs that benefit people with Spina Bifida nationwide, which include the following:
- Plans, hosts and staffs the SBA National Conference every other year
- Plans, hosts and staffs Education Days within Corporate Chapters service areas
- Plans, hosts and staffs the Spina Bifida World Congress every five years to highlight and share the latest research on the care of people with Spina Bifida across their lifespan
- Leads an Adult Advisory Committee with representatives from across the country to ensure that SBA is working to meet the needs of our growing adult community
- Creates and disseminates surveys to various populations within the community to better understand the needs of those populations
- Updates and improvements to the Spina Bifida Healthcare Guidelines to treat people with Spina Bifida across the lifespan
- Management of the National Resource Center – the information, referral, and call center for anyone in the Spina Bifida community
- Design and implementation of an annual Spina Bifida Awareness Month campaign that features stories from across the country to celebrate the SB community
- Works to build relationships with famous personalities and sports stars to raise awareness and heighten our profile
- Lobbies for legislation to improve the life and health of people living with Spina Bifida on a federal, state, and local level
- Publishes a quarterly Spina Bifida magazine with tips and updates for our community
- Builds partnerships with other NGO’s, corporate organizations, and government entities to address the needs of people living with Spina Bifida
“We’ve found over and over that the Spina Bifida organizations are very efficient in getting their members the help that they need. Their volunteers have hearts of gold in donating their time and giving up their weekends,” Anderson adds. “That’s why it is always an honor and a pleasure to contribute to these events, year after year, knowing that we truly are making a difference in the life of a child with Spina Bifida.”
Cure Medical Funds Ongoing Research to Help Spina Bifida + SCI Advancements
Beyond local events, Cure Medical also supports people who have Spina Bifida by developing innovative products like their new 25-inch M14XL catheter, that was designed with feedback from catheter users in the Spina Bifida community.
“No extension tubing is needed with the Cure M14XL intermittent catheter. We have heard from users that some will resort to emptying their catheter into a water bottle and throwing that away to avoid having to transfer onto a toilet, and the M14XL eliminates the need for that as well,” Anderson adds with a smile.
The Cure M14XL Intermittent Catheter is packaged in a pocket-sized wrapper that you can slip discreetly into your backpack, wheelchair bag or pants pocket. And, best of all, the Cure Medical M14XL comes with lubricant included inside the packaging.
If you’d like to be one of the first people who get to try out the new, 25-inch long Cure M14XL intermittent catheter, click here to request a free sample from Cure’s distribution partner Comfort Medical!
Paying It Forward By Choosing Cure Medical
When you choose Cure Medical for your intermittent catheters, you are also helping to fund research to find a cure for spinal cord injury. That’s because Cure donates 10% of their net profit to neurologic research in search for solutions for spinal cord injuries and central nervous system disorders. This is what truly sets Cure Medical apart from other catheter manufacturers.
Founded by quadriplegic Bob Yant in 2008, Cure Medical strives to improve lifestyle options for catheter users by putting their money where their mouth is. Yant is a C4/C5 spinal cord injury survivor, whose injury was caused by a diving accident in Newport Beach, CA when he was 19 years old.
Yant has since strived to find ways to make catherization more efficient, more comfortable, and less stressful for catheter users through the products that are developed and offered by Cure Medical. Yant is also on the board of the Christopher & Dana Reeve Foundation and an active fundraiser for the organization.
“The research we fund is for the study of basic regeneration of the spinal cord. So we support neurological research even though we are a urologic company because if we can get the neurological system functioning as it should, that would be the cure for most urological needs, like catheterization,” Anderson says.
Learn more about the neurological and spinal cord injury research projects that Cure Medical supports at: http://www.curemedical.com/research-key/cureheader_homefinal